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Non-profit organisation number 035-837 NPO
PBO Exemption number 930 016 853 WELCOME TO THE PRADER-WILLI SYNDROME ASSOCIATION OF SOUTH AFRICA WEBSITE Like all syndromes, the Prader-Willi syndrome is not a disease and cannot be cured. All over the world researchers work hard to understand the extremely complex nature of this disorder. However valuable these efforts may be, it is the management of the syndrome that is of vital importance. We trust that the information at your disposal on our website will help you to understand this complex genetic condition. Let us always remember: behind the syndrome, behind the mass of information, there is a sensitive human being, a person in his or her own right with an individual personality and a complex emotional life, who deserves to be accepted by the community for what he or she is. We invite everyone involved with persons with the Prader-Willi syndrome, including parents, family members, friends, professionals, caregivers and other interested persons, to become members of the Association. PWSA (SA) is a member of the International Prader-Willi Syndrome Organisation (IPWSO) www.ipwso.org PWSA (SA) is a member of the South African Inherited Disorders Association (SAIDA) www.saida.org.za Leaflet with brief information on the syndrome
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