The Prader-Willi Syndrome Association of South Africa
PWSA (SA)

We invite everyone involved with persons with Prader-Willi syndrome, including parents, family members, friends, professionals, caregivers and other interested persons, to become members of the Association.

The Prader-Willi Syndrome Association of South Africa was established in March 1990 by a small group of concerned and dedicated parents whose children had been diagnosed with Prader-Willi syndrome. The Association owes its existence to the initiative of the late Birgit Schroder-Hadsbjerg. At the time knowledge about the diagnosis and treatment of individuals with PWS was limited and not readily available. Since then the Association has grown in numbers and its members are part of a worldwide network of information on PWS involving international professionals and families. PWSA (SA) is financed solely by membership fees and donations and run by volunteers.

The Association’s main aims:

• To provide support to parents and caregivers of individuals with PWS.
• To promote knowledge and awareness of the syndrome among the general public and the medical and paramedical professions.
• To improve the care giving and quality of life of all individuals with PWS.

Activities of the Association:

• The Association publishes a newsletter, People With Strength, to update its members and other interested persons regarding news and the latest developments in the field of the Prader-Willi syndrome.
• The Association disseminates important educational material such as information provided by the International Prader-Willi Syndrome Organisation, (IPWSO) to its members and other interested persons.
• The Association ensures that its members receive Wavelength, IPWSO’s newsletter.
• The Association organizes workshops, seminars or conferences from time to time on the latest research and effective management of PWS.
• The Association organizes an annual general meeting to deal with official matters at which occasion parents are also afforded the opportunity to socialise and share their ideas and experiences with other parents in similar situations.

To join, please go to Membership .