Various support structures and mechanisms are available to our members and interested persons. Educational material such as newsletters is made available to members on a regular basis.

Upon request, other interested persons such as family, friends, professionals, health care workers, teachers, residential care workers, etc. are provided with information regarding the syndrome.

Upon request, parents of newly diagnosed children are assisted in making contact with members of the Association with a view to sharing in their experiences and knowledge.

A clinic for persons with PWS functions under the guidance of Dr Engela Honey, of the Department of Genetics, Division Human Genetics at the University of Pretoria. Dr Honey is available for consultations by appointment. She is also the medical advisor to the Association.
Contact details: Tel. +27 (0)12 319 2269 or email: This e-mail address is being protected from spam bots, you need JavaScript enabled to view it

A service to members only:
Please visit the LIBRARY for information on books, DVDs and videos available to members.

Download Library PDF document