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Information on the Prader-Willi syndrome is available in different languages on the website of IPWSO, as well as LINKS to several other international associations. A proposed home for people with PWS
www.henriwarnichfoundation.co.za International Prader-Willi Syndrome Organisation (IPWSO)
www.ipwso.org The IPWSO blog
ipwso.blogspot.com Other international Prader-Willi Syndrome Associations United States of America: (Information also in Spanish)
Prader-Willi Syndrome Association (USA)
www.pwsausa.org United Kingdom:
Prader-Willi Syndrome Association (UK)
www.pwsa.co.uk Australia:
Prader-Willi Syndrome Association of Australia
LINKS to other State PWS Associations in Australia
www.pws.org.au Germany:
Prader Willi Syndrom Vereinigung Deutschland e.V.
www.prader-willi.de Netherlands:
The Dutch Prader-Willi/Angelman Vereniging
www.praderwillisyndroom.nl New Zealand:
Prader-Willi Syndrome Association New Zealand
www.pws.org.nz Genetic Counselling services University of the Witwatersrand, Johannesburg
Division of Human Genetics
University of Cape Town
Division of Human Genetics –Groote Schuur Hospital/Red Cross Children’s Hospital
web.uct.ac.za South African Government Services Information on the disability grant:
www.services.gov.za Information on other social grants:
The South African Social Security Agency (SASSA) is responsible for the administration and management of social grants.
www.sassa.gov.za Other A Comprehensive Team Approach to the management of Prader-Willi Syndrome:
ipwso.org PWS European Union Research Project:
www.pwseu.org.uk The South African Inherited Disorders Association (SAIDA):
The PWSA (SA) is a member of the South African Inherited Disorders Association. SAIDA acts as an umbrella organization for the different support groups of inherited disorders in South Africa. SAIDA aims to provide support for and promote effective communication between the support groups. SAIDA is also actively involved in promoting the understanding of and the education regarding the many inherited disorders that occur in South Africa.
www.saida.org.za Find a dietitian?
The Association for Dietetics in South Africa (ADSA)
www.adsa.org.za Interesting facts about obesity:
South African Society for Obesity and Metabolism
www.sasomonline.co.za
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