Non-profit organisation number 035-837 NPO
PBO Exemption number 930 016 853

A proposed HOME for people with PWS
 Information brochures available in English and isiZulu 

WELCOME TO THE PRADER-WILLI SYNDROME ASSOCIATION OF SOUTH AFRICA WEBSITE

Like all syndromes, the Prader-Willi syndrome is not a disease and cannot be cured.  All over the world researchers work hard to understand the extremely complex nature of this disorder. However valuable these efforts may be, it is the management of the syndrome that is of vital importance. We trust that the information at your disposal on our website will help you to understand this complex genetic condition. Let us always remember: behind the syndrome, behind the mass of information, there is a sensitive human being, a person in his or her own right with an individual personality and a complex emotional life, who deserves to be accepted by the community for what he or she is.

We invite everyone involved with persons with the Prader-Willi syndrome, including parents, family members, friends, professionals, caregivers and other interested persons, to become members of the Association.

PWSA (SA) is a member of the following organisations and associations: 

* International Prader-Willi Syndrome Organisation (IPWSO) www.ipwso.org

* South African Inherited Disorders Association (SAIDA) www.saida.org.za

* Western Cape Forum for Intellectual Disability (WCFID) www.wcfid.co.za

* The South African Association for the Scientific Study of Mental Handicap e-mail This e-mail address is being protected from spam bots, you need JavaScript enabled to view it

Leaflet with brief information on the syndrome
Download the English version here
Laai die Afrikaanse weergawe hier af
Download the Zulu version here

Information Brochures:
Prader-Willi Syndrome: Misunderstood because it is often not diagnosed
I-Prader-Willi Syndrome: AYIQONDWA KAHLE NGOBA IVAME UKUNGAXILONGWA (isiZulu)

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