We are a small group of parents running a support group for families of people with PWS in South Africa. For the history of the previous association, PWSA (SA) and the change to PWSS (SA) please visit the History of PWSA (SA) page.

Most of our communication to parents and others involved in Prader-Willi syndrome in South Africa is through our Facebook page, https://www.facebook.com/pwsasa/. Latest information and research about the condition is regularly posted to the Facebook page. This is the best place to keep up with what is going on in the PWS community. Please “Like” our page.

PWSS (SA) is part of a broader umbrella organisation Rare Diseases South Africa (RDSA). All families affected by the Prader-Willi syndrome are encouraged to register with Rare Diseases SA due to the substantial benefits for all families affected by PWS. RDSA is the channel which the contact persons of PWSS (SA) can use to reach families affected by PWS.

Please also feel free to contact us via the website, we have designated regional contact people who hopefully can help you with any request or questions you may have. To contact us, send us a message via our contact page. 

We have also started some regional whatsapp support groups. If you would like to join one of these small discussion groups, please fill in the form on the contact page of this website. In the “message section” please request to be added to a group, giving us the area you live in and your cell phone number.

Please contact us if you are looking for specific information and not finding it.

We hope that you find our website helpful.