INTERNATIONAL PRADER-WILLI SYNDROME ORGANISATION (IPWSO)
International Prader-Willi Syndrome Organisation is the international non-profit support group for all countries where there is even just one person with Prader-Willi syndrome! IPWSO is an international umbrella and supports all PWS Associations. In those countries where there is no formal PWS Association, IPWSO supports the medical and parent delegates. Currently 103 countries worldwide are part of the IPWSO family.
CARING FOR YOUR ADULT DAUGHTER OR SON AT HOME? NEED SOME HELP? Please see articles from FAMCARE
FAMCARE is an international committee that has been formed for the purpose of supporting families who have their adult son/daughter/relative with PWS living in the home with them. These articles hold valuable information from the experiences of parents and professionals working with people with PWS.